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The Gout Dugout.Issue #036.Krystexxa lauches; high purine foods at Xmas;
December 23, 2010
Welcome to the December 2010 edition of the Gout Dugout newsletter the free 10 minutes' read that gives you useful beating gout ideas. This one is timed closer to the Xmas festivities, so you won't forget the gout foods to avoid described below.
THE COST OF KRYSTEXXA (PEGLOTICASE)
Savient pharmaceuticals have now released the cost of Krystexxa. (pegloticase). Before I say what it is I should say that it's a novel treatment, although I wouldn't use the word revolutionary because rasburicase is also an approved biologic drug for gout that's also an intravenous infusion. But rasburicase is only available for a very limited gout population.
Krystexxa treatment involves going to an infusion center (centre) every 2 weeks for about 2 hours of infusion, and at least for about 6 months. It will take this long to get results. Some will need longer - maybe over a year in more severe gout cases where tophi is a problem.
So how much is it? The wholesale cost of Krystexxa (pegloticase) will be US$2,300 for the 8 mg vial that's infused every two weeks. So 26 infusions over a year will cost (wholesale) US$59,800, more than the Wall Street forecasts of up to US$50,000. So this kind of serious money means very few people will be able to pay for it themselves, and patients will be using private or government insurance.
If you want Krystexxa, and have no insurance, click on the Krystexxa Connexxions Support Services tab and then the patients' assistance folder on the Krystexxa website (link below) to learn how you might be helped.
A real dilemma will be after gout attacks appear to have ended or a couple of tophi, for example, have cleared up... will they return, and will you need to go back on a Krystexxa (pegloticase) course? And if so, will your payer continue to pay? Not much has been said about this. And don't expect the price to fall until about 2026.
Savient Pharmaceuticals have produced a website for Krystexxa. Among other useful items, you can watch a video about the preparation of a Krystexxa infusion. The site says it's only
for U.S. audiences, and Krystexxa is only currently available in the U.S.
Visit the Krystexxa website
What a shame the December issue always carries a gout health warning in this season of food temptation. Or, more precisely, a foods to avoid for gout warning. If you've noticed that your gout attacks get triggered by certain foods, read on for maybe some new food traps. These Christmas delights are high purine foods. Or other gouty people have reported they have triggered their gout attacks:
Cranberry sauce, mincemeat (the filling in mince pies, widely eaten in English speaking countries at Christmas), gravy powders and meat extracts, most kinds of game including venison (deer meat) goose, pheasant, partridge etc. (Duck and rabbit, according to the purines table the website links to, are only medium purine). And alcohol.
Christmas foods not thought to trigger gout attacks - turkeys, chicken, ham, nuts, (except peanuts and cashews, but both of which are only medium purine), vegetables, berries and cream. Good gout diet accompaniments to turkeys include red cabbage
(with its high amount of cyanidin and considerable Vitamin C) and Brussels sprouts.
Beware the following foods which might show up in hampers or as a present someone has innocently given you -
Anchovy paste, yeast extract foods (or a brewers yeast dietary supplement), exotic brands of tinned sardines, mackerel and probably pilchards (an older sardine). Of course all these fish are real teasers for gouty folk because they are also high in the EPA and DHA omega 3 fish oils which are so good for gout. Plus pastes, spreads and pâtés of these fish and potted versions. And the same for game (and their livers). And gimmicky foods that show up at Xmas like liver pâtés with added cranberries and similar combinations.
Strawberries for gout seems too good to be true but over the years enough people have said they work for it to be true in some cases. Beginning of course with one of the 18th century's most famous scientists, Carl Linnaeus. I suspect strawberries work for mild cases of gout at uric acid levels that aren't much higher than normal, but this is just a guess. If strawberries have worked for you, and you've been measuring your uric acid level whilst eating them, I'd love to have some figures.
Here's another strawberries testimonial you won't have seen before. It's from someone who responded to my strawberries for gout article at www.buzzle.com.
FREE pH FOODS CHART AND RECIPES
Many diets are capable of getting the uric acid level down. One is an alkaline (pH) diet. If you want a free pH food chart with 45 alkalizing recipes, click on this link to phionbalance.com and when the home page arrives, the download link for the chart is on the right. You can then print out the food chart, and take it with you when you go food shopping. pHionbalance products
These people are based in the U.S. If you live in Britain, Ireland, or continental Europe, a good website to order pH foods, pH test strips, alkaline water drops.... in fact in all there's a huge range, is
If you live in a country that's going through a big freeze with huge snowfalls, as so many are at present.... don't forget how important it is for gout sufferers past and present, and likely future sufferers, to wrap up warmly when you go out, and keep warm in homes, offices and elsewhere.
Thanks for reading, all the best of health, and Merry Xmas 2010.
John Mepham BA.(Econ).
P.S. You may distribute this newsletter freely and free-of-charge, providing any links in it remain unchanged and it remains intact. Partial copying is not allowed.
NB. The contents of this newsletter contain medical information, not medical advice. Please always discuss gout remedies with a doctor, or other health care professional, before implementing any treatment.
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